Endometriosis Association, Inc, endometriosis association.

Endometriosis Association, Inc, endometriosis association.

Endometriosis Association, Inc.

International Headquarters 8585 N. 76th Place Milwaukee WI 53223 USA

Mission:

The Endometriosis Association (EA) is an international, nonprofit organization founded in 1980 to provide education, support, and research to those with endo and their loved ones. Membership is $35 U.S./$52 Canadian per year for those with endo. Associate, family and gift memberships are also available. The EA produces educational literature including a bimonthly newsletter, brochures in 28 languages, educational videos(available in Spanish), audiotapes, CDs, and more. The EA also conducts and promotes research at the Vanderbilt University School of Medicine, and provides support to women and girls with the disease through local chapters and support groups, crisis call listeners, contact lists, a prescription drug discount program, correspondence networks, and more. A free informational packet including a catalog of materials and publications is available at 1-800-992-3636 (North America), or log onto the website at www.EndometriosisAssn.org.

Role: Client Served

6 people found this review helpful

I would have given zero stars, but that is not allowed.

I called this place for some guidance after being diagnosed with endo. I asked to speak to the President and was told flat out that she doesn’t talk to people. How can the head of an organization not talk to the public? Not even by a scheduled request? When I ask what they actually do, they said support, research and education. I was looking for support and they did nothing.

I asked if they could suggest a doctor. They will only give you a doctors list if you pay $40 for a membership and then $5 more for a list. Really. I got a free brochure, that was really dated. Now the only stuff I get from them is asking for money.

Did anyone else notice the other reviews are only by people associated with this place? I wish there was more reviews by normal people.

Get your act together and start helping women!

If I had to make changes to this organization, I would.

Get better leadership, have a way to help callers

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1 person found this review helpful

I first came across the Endometriosis Association when I was diagnosed (belatedly, as so often happens) with endometriosis. I became a member and received the newsletter and publications, and right away I was impressed by the combination of “heart” and science in the EA—the commitment to building a support community for women with this mysterious disease while serving as a catalyst for groundbreaking scientific research. I was even more impressed when the EA uncovered the link between endometriosis and environmental pollutants like dioxin, which helped the medical community to understand the misnamed “career woman’s disease” in a much broader way. The more I learned about the EA’s work—the collaborations between laypersons and doctors, the building of a global support community, the careful data gathering, and the independent fundraising for cutting-edge research—the more respect I had. In fact, I found the EA’s approach so remarkable that I wrote a sociological article about it and documented the organization’s history so that it could serve as a model for others. While doing this, I read many, many personal testimonies about the EA’s life-changing work. I’m now an advisor to the EA, and I strongly recommend the EA to anyone who wants the best information and support relating to endometriosis. The EA’s work has always been mostly membership-funded, and while it stretches every dollar to the maximum limit, it would certainly benefit from more funding. My personal experience and my research both tell me that becoming a member and making any donation will have a huge multiplier effect.

If I had to make changes to this organization, I would.

find more funds and staffing to support its work

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1 person found this review helpful

I learned about the Endometriosis Association after I was diagnosed with this disease. This organization helped me so much and I learned accurate information in helping me deal with this disease. Just having someone understand what I was going through was very encouraging to me. After reading the Endometriosis Sourcebook, learning information, changing my diet, and talking with other women, I felt better educated to deal with the medical problems I face associated with endometriosis. My husband and I have supported the Endometriosis Association for years and I encourage you to do as well. I recently became a board member and I am looking forward to educating and encouraging other women with endometriosis that need help as they deal with their diagnosis. I recommend you to look at the website at www.EndometriosisAssn.org or read the Endometriosis Sourcebook for more information.

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Role: Board Member

2 people found this review helpful

I remember when I was finally diagnosed with Endometriosis. I had so many questions, but no one seemed to have the answers. I remember sitting in the waiting room of the doctors office and I picked up this yellow brochure for the Endometriosis Association. Later that day, I contacted them. It was life changing for me. Not only did I have a wealth of information and knowledge at my finger tips, but there were people who truly understood what I was going through by having this disease. As a member of the EA, you have access to the best information out there! The books, newsletters, healthcare provider list, programs and the ground breaking research are what truly make the difference. I have personally been involved for the past 5 years by serving on the board and I have seen first hand just how much goes on each and every day. I would encourage you to get involved by becoming a member or a donor. www.endometriosisassn.org

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